Tuesday, September 8, 2009

Discretion is a Virtue...

Sometimes in this world, it's not WHAT you say to someone as much as it is HOW you choose to say it.

When I was younger, children were the most brutally honest in their reactions towards me. This, of course, is always a reflection of the way they are being taught by their parents or how they see their parents react to certain things. In Syria, I had people coming up to me to actually rub my skin to see if it would come off... I've also had children asking their parents loudly whilst pointing directly in my face: "Mum! What's wrong with THAT girl? She looks like she has a cow's skin!"... There is not much you can really do to defend yourself at the age of 8 or 9 when that happens, because it's up to the parents of that child to teach them discretion, whilst still remembering that it is a child you are dealing with. The world is a cruel place.

Then there is the polite yet curious child, my favourite kind. In a supermarket in Cyprus, when I was almost 8 yrs old, a little boy of about 5 or 6 was with his dad and said, not too loudly and without pointing, but they were near enough to myself and my mother to be heard: "Daddy, why does that girl's skin look like that?" His dad proceeded to scold him, but it was unnecessary because you could tell that this little boy genuinely was concerned and wanted to know the reason. My mum encouraged me to go up to him and explain. She said to me that sometimes people will say horrible things, but there are some people who will really want to know about my skin and about me, and I should always be ready to answer any of those questions instead of feeling uncomfortable. She said: "It's better that they ask you outright, than stand across the room and point and comment."

After explaining to the little boy that my skin was patchy because I had a condition called Vitiligo etc., I made a friend for the rest of that hour in the supermarket. He apologised if I had been offended (he was incredibly mature for his age, obviously!) and asked if he could walk with my mum and me as we shopped. It turned out to be a positive experience overall, and at the end of the day I much prefer if someone simply asks, instead of assuming they know.

This anecdote brings me to the real purpose of today's post, which is to reply to an email I received early this morning. I wanted to share this with you to show the more tactful individuals who have contacted me that not everyone thinks in the same way, and also to answer the questions I was asked by this particular individual, no matter how it was written.

The original email, unedited except for name omission:

Hi Marcel !
My name is ****** and i recently stumbled upon your biography while researching art online. Needless to say i could not believe it until i saw your photo!
I want to know if you feel like a .......Person? A Black Person? A White Person? Or, perhaps is it more dramatic, like the change of sex when a woman trasforms into a man and vise versa?
Do you lie to yourselfwhen it comes to being black or white?
Can you compare it to changing your looks when an actor applies his(her) makeup he has to play a role?
If all people on Earth would have one skin color and look exactly the same, would there still be any racism left? Do you think that you "act differently" because, technically, you are a white person ?
Ethnically, you look like an Italian or Southern Spanish. Some Finns look like you too, or Swedes

My reply:

Hey ******, thanks for your email.

You asked some very interesting questions although some of them are a little confusing. For example, I do indeed feel like a person, after all, I am a human being so I'm not sure how to feel any otherwise.

As for whether I feel like a black person or a white person, I am mixed race to begin with and so I feel all of these things at once, my skin is merely the visual contact with which other people identify me. I enjoy the fact that people cannot pinpoint where I come from, or what race I truly am, as it entails more than a skin colour, there are facial features, hair characteristics etc. I do not like being categorized or compartmentalized in any case, and believe that my current condition is a positive in the sense that I cross racial and ethnic boundaries with the way I look. I have been asked which box I tick on forms that require Ethnicity details; I refuse to tick "Other" and wish there was a "Mixed" box, however due to my pride of being West Indian, I usually settle for "Black and White Caribbean".

You are the second person to say I look Italian. I get Spanish quite a lot; if my hair is straightened out I may get Eastern European; I currently have bangs which some people say makes me look somewhat Oriental; I have been told I look Turkish as well as Venezuelan; after a few failed attempts, most people do start naming Scandinavian countries in an effort to figure out where I come from. No one has ever said Trinidad.

I think having a skin condition like Vitiligo is a little more serious than an actor having to apply makeup for a role - I will speak for myself when I say that a person with Vitiligo only wishes to be who they are and not play any role to satisfy anyone else. However, we are faced with society's definitions of what we are every day, it requires a lot of strength and fortitude to take a stand and make the world accept you for what you are and not what they want you to be. Unfortunately, not everyone who suffers with a skin condition or disease has that kind of confidence, which is exactly the awareness I am trying to bring to the forefront.

I don't think the Earth was meant to have everyone the same colour, that concept is slightly utopian and unrealistic when you take into consideration climate or even other factors like race (race does not equal skin colour, let's get that straight), nationality, religion or cultural factors which would still set us apart from one another. We've been on the earth for quite some time now and still cannot agree who is right or who is wrong. I doubt erasing all skin colour would solve that problem.

When a child asks me why my skin is so white, I need to be a little tactful with how I put it to them, but I think I have come up with a reasonable explanation that satisfies all parties. I ask if they like to see lots of differently coloured crayons when they open up their crayon box, or would they prefer to have only one colour to use for their colouring books? The answer is always the same - everyone likes to have choice. So I tell them that in the same way a crayon box has a lot of different colours in order to make the prettiest picture, the world was created with people of many different colours so that we would make it a more beautiful and exciting place.

I have to object to your question about "acting differently" because "technically", I am a human being. "Technically", I have DNA like every other Black, White, Indian, Chinese, Spanish or European person in this world. "Technically", I am not a White woman. My heritage and bloodlines say otherwise, as does my original skin colour. I am a mixed race woman, and I don't see that I should "act" a certain way because my race dictates it? Is our behaviour not dictated by our upbringing, our nurturing, our environment and the world we are otherwise exposed to? If someone is physically abused in their youth, might they not act differently to someone of the same skin colour who was not abused? I think you may be touching on the stereotypes of Black or White people that are fed to us through the media - Ebonics or other such factors. Behaviour is not exclusive to race so I'm sorry that I don't know how to answer your question. I doubt I could in any case since I grew up in the Middle East and Mediterranean and was witness to other religions and ways of life, which all contributed to how I behave as a human being and not as a Black or White woman.

I hope my answers helped you, and I hope you don't mind that I allowed other people to see this discussion, as you did touch on some issues that I had planned on bringing up at some point on this blog. Thank you once again for your email. Be safe and blessed always.

Darcel (not Marcel)

Friday, September 4, 2009

Your Skin and the Sun...

Before getting into the more personal aspects of what living with Vitiligo has been like, I would like to use this post to answer a few of the more practical questions that have been sent to me regarding my skin, first and foremost being of course - SKIN CARE.

Do you really wear SPF 100 every day?

No. It depends on the length of time I plan to be in the sun, how active I intend on being whilst exposing my skin to the sun and also the daily weather forecast. I generally wear makeup that contains SPF (ranging from 15 to 30) in it, which protects my face and neck. I also sometimes have a fringe (or bangs as it is called in the West) which can help protect my face from the sun, or make a style statement by wearing hats, scarves or sunglasses... There's no reason why we cannot have fun whilst protecting our skin...

I wear protection on my arms, chest and shoulders if I am going to be exposed to the sun frequently during the day e.g. when out shopping, hanging out in the park or when I was in the playground back in my school days and we were not allowed to stay in the classrooms at break time. This only needs to be about SPF 30 if I am switching between being inside and outside often, but common sense dictates that even when outside, I try to walk or sit in the shade.

SPF 100 is what I use MOST DEFINITELY when I will be spending a hot afternoon outdoors at a BBQ or in the park or a day at the beach, which in any case is a rare thing for me (despite being an island girl!). The sun's rays are most harmful during the hours in which people tend to visit the beach (mid- to early afternoon), so I try myself to go either very early in the morning or later on in the afternoon (after 3pm) when the sun will not be as strong. Of course, this is sometimes inconvenient for everyone else in the group wanting to sunbathe etc. so I will wear a T-shirt sometimes as well as my SPF100, swim for shorter periods of time, as the water reflects the sunlight, and reapply sunblock often. Once again, it never hurts to wear a hat and/or sunglasses whenever you can.

Like I said, there is no reason to not look good whilst protecting your skin. I have acquired a number of cardigans, scarves and light jackets to carry with me when out and about, perhaps when I may not have any more sunblock or sometimes don't wish to have the hassle of constantly having to reapply. There are a lot of stylish coverup options available that are in light, breathable fabrics that won't be bothersome on a hot day.


How does your skin react in the sun without protection?

When I was nine years old, having never really protected my skin whilst it was dark, we had a serious wakeup call after a long day at the beach in Trinidad. By this point, my skin was now completely patchy with both dark and white patches all over my body due to the Vitiligo. I got sunburn and sunstroke and woke up the next day with water-filled blisters from head to toe. My skin was so sensitive to movement because of the blistering (the breeze blowing on it, an insect flying past etc.) that every morning for almost two weeks I would sit in a bathtub filled with cool water for hours on end every morning when I woke up. I looked like I had been burnt in a fire and the burn was verbally compared to first or second degree fire burns by my doctor, who actually could not find a suitable place to inject me for a booster shot I was due to have.

After about a week the blisters started bursting and deflating, after which my skin was sore and red all over from the sunburn, and then of course after some time, my skin started peeling. This experience was enough to ensure that any time spent in the sun, especially at the beach, meant that I HAD to be fully protected.

A mild day of sun, where I may be shopping or running errands, will leave me sunkissed and slightly pink without any protection. As mentioned before, I try to spend as much time in the shade as possible if I have to be outside without sunblock, or I carry a light jacket to wear when I can't avoid the sun.


Having Vitiligo means your skin does not have the protection it would normally have, whether you have a single patch or many patches, it is YOUR RESPONSIBILITY to ensure that you have a way of protecting your skin. There is a greater risk for skin cancer and this is no joke. Sunblock can be smelly, it can also be inconvenient or irritating to have to constantly reapply, I totally empathise with this and will admit that I am not always willing to be as responsible as I should with sunblock... However, I have stressed that there are other ways to protect yourself. If your patches are on your face and neck, try using makeup or a moisturiser with SPF content to provide some protection. I currently use MAC makeup which has proven to be very effective, however, anything that provides a barrier between your skin and the sun should work (especially if it is waterproof which will protect against swimming and/or perspiring during the day!)

Remember that your lips may also have lost pigment. Moisturise, moisturise, moisturise! And make sure your lip balm or lipstick of choice also provides sun protection. Most of them do nowadays.

Please note that skin protection is VITAL for ALL SKIN TYPES and ALL RACES, even if darker skin tones are naturally more protected, this does not matter in the long run. EVERYONE is prone to sun damage and even skin cancer, so regardless of whether you have Vitiligo or not, be aware of your skin's relationship to the sun.