Showing posts with label skin colour. Show all posts
Showing posts with label skin colour. Show all posts

Thursday, March 24, 2011

Vitiligo and Pregnancy

Forgive my recent absence from the blog as I have been becoming more acquainted with my toilet bowl in the New Year than with my MacBook... due to morning sickness!

Yes, I am very happy to announce that I am expecting my first child this year :) I wasn't sure if I wanted to let such a wide audience of people, who don't know me personally, know about this... but now that I am safely at five months, I believe that the past two years of connecting with people with Vitiligo from around the world served a huge purpose in my life. I see Skinned Alive as a part of my bigger family now and a forum where I can release some of my worries.

This blog post is, however, less about announcing my pregnancy than it is about voicing the thoughts in my head regarding the theory that Vitiligo is hereditary. In my particular case, this is not true, as I am the only one in my family and family history with the condition. However, as it has been explained to me, it is more to do with the presence of a specific gene than the presence of the actual condition. This concerns me deeply when it comes to having children of my own now, understandably so.

In certain regards, my actual journey with Vitiligo, albeit ongoing, was so long ago in my mind (my childhood with changing skin colour) that in some ways I feel I have surpassed those particular trials and tribulations and moved onto a different set of difficulties following my return to Trinidad which now concerns my race and identity.

To imagine my child ever having to go through something that in some ways I have forgotten (for want of a better phrase) or pushed to the back of my mind, is a really hard thing to think about.

I can't deny the possibility that my son or daughter may one day develop the condition. Even if I don't wish to think about it right now, I must accept it and be prepared. The questions running through my head:


  • I was strong enough to get through it as a child, but as a woman, do I have what it takes to help my own child get through this? 
  • Can I be like my mother; will I have those qualities as a mother (not as someone who has Vitiligo) to guide my child through this, or any condition, with unconditional love and strength and be able to mask how I may be feeling about what they are experiencing in order to get them through it? I know there must have been nights my mother - and father - cried without me knowing, all the while pushing me to be social and live a happy-go-lucky childhood... The thought almost kills me...
  • I won't always be there to defend my child in the event that something happens or that they are visibly different to their peers. Will I be able to teach them enough to give them the confidence to step out and face the world when I am not around?
  • Even if my children do not develop Vitiligo, they will still need to learn about why their mother looks so different (even to them) - will I raise kids who are strong enough to not let what others say about 'Mummy' affect them, be it in the school playground or on the street?
Of course, I will teach my babies to be tolerant of people from all walks of life and of course they will know all about their mother's condition as they grow older and can process such information. I just hope that the same strength of character that my own parents showed - which I could never understand as a child due to ignorance but today speaks volumes to me with everything that I accomplish thanks to what they did for me and gave to me in terms of personality and drive and passion - is a strength of character that I can find when I need it. 

Even though she is my mother and the closest person to me since birth, she had to watch me grow through something that she could never fully understand due to not having experienced it. And that's gotta be hard if it's your child. If my children experience Vitiligo firsthand, will it be an advantage that I know what they are going through and can relate to them in that sense? Or will I be too emotionally involved in their experiences by recalling my own journey and stumbles and placing it on their shoulders? I'm in two minds about this (and very emotional in front of my computer screen right now!)

At this point, I can only pray for the best and know that the same people who helped me to become who I am, will help me to raise my child to be exactly who he or she was meant to be, Vitiligo or not. When all is said and done, bring it on... 

Wednesday, January 12, 2011

Frustration

Everytime I think I've got it under control and people have seen enough of me to warrant less ignorance and a little more respect, some toad crawls out from under their rock and makes a totally stupid, indiscreet, completely tactless comment about my skin colour that just makes me so angry by this point. I guess this is partly because of all that I've tried to do in the past year and a half to shed more light on my condition, including hosting the first Walk for Skin in Trinidad, that I'm surprised that such a small country could still have people who haven't paid attention to any of this and opened their minds a little bit.


My partner's neighbour decided the other day to comment to him rather blatantly:


"Aye, we see you bring this white girl home by you sometimes - she's like a vampire man! Where did you find her?"


Which, of course, warranted the string of obscenities my partner couldn't hold back and needless to say, he no longer speaks to his neighbour.


Today, I came home to find a comment on a Facebook photo in which I am tagged (in a friend's album from 2 years ago), where someone I don't know decided to actually press the Submit button and ask:


"Wow!! How is she so white like that?!"


This really rattles my nerves. First of all, because I AM TAGGED in the photo. Which means that you are such a bloody tactless human being that you couldn't even ask your question in a private message to my friend, but instead didn't mind that I saw the extent of your ignorance. Not to mention that were I a weaker person, your comment would make me feel like I was a lesser human being because you felt the need to point out something I have no control over - my skin.


But what really annoys me about these situations is that these are 'my own people', Trinidadians, some of the most ethnically and racially mixed people on earth, making these comments towards ME, one of their own (although admittedly I don't always feel like I belong). Furthermore, sometimes I just wish I could flip the script: how about I call out to a very dark person across the street one day and address them as "Blackie!!" in front of crowds of people? Or how about I comment on a photo about someone's dark skin colour? Do you know how unacceptable (even racist) that would be of me?! 


So how is it any different when it is someone who is "too pale"?! And why do people even feel the need to comment on the obvious? Yes, my skin is white, anyone with half their vision can see that, what contribution did you think you were making to the grand scheme of the world when you chose to point it out?


Answer me that.